Forest City Behavior
Excellence in Treatment for Developmental Disabilities

Illinois Threatens Autism and Developmental Disability Service Cuts

"Every day when you came in to work you'd watch for the sign at the front gate saying 'paychecks are in'. There was a credit union office right outside the gates that did a booming business providing short term loans for the workers while they waited for their checks."

This was a story Tom Bachhuber, a veteran state employee (now retired), used to tell about working at the Dixon State School in Dixon, Illinois, in the 1970's. The State School is no longer in operation, but with the stories coming out of Springfield, Illinois right now, it seems as if those stories from nearly 40 years ago may be coming back around.

Because of the general audience focused upon by major newspapers, it can be difficult to get much information about how the larger budget issues may affect specifically autism and developmental disabilities services. For this reason it seems important to discuss these issues here and make sure that that those who may be affected are aware of the implications of Illinois' budget issues on services. In short, ladies and gentlemen, the situation is dire.

To place these cuts in perspective, a memo sent to DD provider organizations by Lilia Tenity, Director of the Division of Developmental Disabilities on June 11th, 2009, was published publicly on the ARC of Illinois website (scroll down the page to see the memo). In this memo Director Tenity indicates to providers that " The General Assembly recently approved a "50-percent budget" for fiscal year 2010 that cuts a long list of vital services and programs. This budget falls far short of meeting the statutory obligations and needs of the State, and fails to fulfill our basic commitments to the people of Illinois."

She continues: "The legislature's "50 percent budget" cut $2.24 billion from the DHS budget severely impacting our ability to provide vital services to people with developmental disabilities and their families. As a result, we are forced to cut a number of grant programs and consider significant rate cuts to remaining programs."

Director Tenity goes on in the memo goes to list (by funding codes) the grant programs that will no longer be funded as of June 30th. The funding codes and titles are apparently important to bureaucratic systems, but leave something to be desired in terms of description for the rest of us, so we'll clarify a few of them below:


In addition Director Tenity's memo goes on to indicate that "Significant rate reductions, in the range of 20 - 30% annually, for all remaining programs including Community Integrated Living Arrangements (CILA), Developmental Training (DT) and Intermediate Care Facilities for Persons with Developmental Disabilities (ICF/DD) services are still under review." Given that Illinois was already ranked at or near the bottom in provision of funding for community services for people with developmental disabilities nationwide, coming in dead last (51st) for number of people per capita served in small residential (6 or fewer people) in 2006 according to the most recent State of State in Developmental Disabilities report the proposed cuts seem all the more poignant and troubling.
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These cuts are of concern to those of us at Forest City Behavior in a number of ways. Most directly, and in the interest of full disclosure, we provide assessment and consultation services to many of the types of agencies mentioned above. In the bigger picture, however, it is important for people to be aware that, due to the already meager funding offered in Illinois (51st, remember) most Autism and Developmental Disability service agencies operate on a shoestring budget in the best of times. Successful behavioral treatment requires the active participation of everyone involved in a person's treatment. It requires healthy, fully functional support agencies. In many cases we are providing behavioral services to support and prevent people from moving out of community placements and into state operated institutional settings. With the bare-bones funding proposed by these cuts this will simply no longer be possible.

If these issues concern you as they do us, it is vitally important that your state legislators be made aware of those concerns. You can identify your representatives by entering your zip code at Illinois State Board of Elections search page.

by Erin J. Wade, PhD